The Mission of the Canadian Cystic Fibrosis Foundation (CCFF) is to help people with cystic fibrosis. To this end, the Foundation funds research towards the goal of a cure or control for CF, supports high quality care, promotes public awareness of the disease, and raises and allocates funds for these purposes.  The Central Alberta Chapter is one of the 50 Chapters across Canada which are a part of the Foundation.

Our Chapter is made up of approximately 15 families. Chapter members include parents, grandparents, relatives and friends, CF adults, and many unrelated volunteers.  An elected Board of Directors oversees the operation of the Chapter.

The Central Alberta Chapter benefits enormously from being part of a nationwide organization. Chapters across Canada combine with the Kinsmen, Kinettes, and Shinerama students.

What Do We Do?              

Regular board meetings are held the third Tuesday of each month at Bethany Care Collegeside (Red Deer College Campus). The Annual General Meeting is usually January of the new year.

The Board actively develops fundraisers and implements these within the communities we serve. It is also our responsibility to provide public education to promote cystic fibrosis awareness.

The Board of Directors, with the help of a limited volunteer base, has been quite successful in fundraising. Last year the Chapter was able to designate a significant sum of money for the CF clinic, clinical research and lung transplants. These funds were raised through the hard work and dedication of our families and friends who commit their time to finding a cure and/or control for this fatal disease. In order to continue to make a difference in the lives of our children by improving medical care and increasing their life expectancy, we need more people to be involved with raising funds to support these
programs.

What Can the CCFF Chapter Do For YOU?   

The Central Alberta Chapter can provide support for you and your family in dealing with the effects of cystic fibrosis, and we can provide you with a means to fight the disease in a way that will benefit everyone affected by it.

In providing you and your family with support, we offer reliable and accurate information about the disease.  This information is available in two locations:

• on the website of the national office of CCFF at www.cysticfibrosis.ca
• through printed pamphlets kept on hand in the chapter office
• Cystic Fibrosis in Canada
• Your Child and Cystic Fibrosis
• A Teacher’s Guide to Cystic Fibrosis
• Sexuality and Cystic Fibrosis: Information for Adolescents
• When a Parent has CF: Explaining your illness to a child
• Cystic Fibrosis and Lung Transplantation

We also provide support through opportunities to meet other CF families, as follows:

•  Chapter fundraisers are staffed by volunteers, mostly people from CF families
•  Chapter membership provides you with the newsletter sent out bi-monthly and reporting about both recent and upcoming chapter activities and events
• Providing opportunities on a monthly basis for families and friends affected by CF to meet and have the opportunity to seek guidance, advice and support

Finally we provide you with a means to fight the disease in a way that will benefit not only your own family, but everyone affected by CF.  By becoming involved in chapter fundraisers which raise funds for scientific, medical and clinical research, you will make a difference for others.

CCFF Charitable registration number: 10684 5100 RR0001